There are many fantastic research studies for T1D happening here in BC and across the world! If you are interested in helping advance T1D research, check out these studies that you or someone you know might be eligible to participate in.
1) Using Personal Health Record Technology for Shared Decision Making as Routine Practice for Diabetic Youth
If you are 18-24yrs with T1D, contact firstname.lastname@example.org to participate in this research study!
This research asks how personal health record (PHR) technology can be designed and implemented to facilitate shared decision making (SDM) for diabetic youth aged 18-24yrs in a manner which confirms its integration in clinical practice to support self-management decision-making. The researchers are interested in the perceptions of patients and providers about the likelihood of successfully implementing such a system.
The research will be carried out in two sequential phases over a four months period. Participation in phase 1 is one hour (online/ phone meeting) and requires participants to validate a functional model for the system followed by a brief phone interview. Participation in phase 2 is also one hour (online/ phone meeting) and requires completing an online survey and a phone interview.
The study invites patients aged 18-24yrs with T1DM and their care providers (nurse, dietician, endocrinologist, diabetologist) to participate in phase 1 and 2 .
2) Transition to adult care for young adults with T1D
The purpose of this study is to determine whether a transition clinic for young adults where both the pediatric and adult health care providers are present will make change the transition experience for adolescents and young adults with T1D. The results of this study will be used to advocate for health services that better serve the needs of young people with diabetes who are transitioning from pediatric to adult diabetes care.
Participation involves completing surveys at time of transition and 1 year after transition. The surveys can be completed online (on a computer at home) or on paper. Some questions in the surveys ask about your transition readiness, and your well-being (e.g. energy level) as well your emotions and feelings. One year after you transition from pediatric to adult care, you will get another online survey to evaluate your transition experience.
All surveys will take approximately 25 minutes to complete. You will not be asked to provide any blood samples. The research team will access your clinical record from the last year to get information about different aspects of your care (e.g. number of clinic visits, Insulin regimen AIC levels, etc.).
You are eligible to participate in this study if you are 17 years of age or older, have T1D, are followed at BC Children’s Hospital or Abbotsford Regional Hospital and have been identified by the diabetes team as a candidate for transition to adult care during the study period.
In appreciation of your participation, you will receive a total of $50 in gift cards. The first gift card for $25 will be mailed to you after completion of the first surveys, and another gift card for $25 will be sent after you have completed the follow up surveys, 1 year after transitioning to adult care. You can choose your gift cards from Amazon, Cineplex or Indigo.
If you would like to participate or have any question please contact:
TrialNet is a research group dedicated to the study, prevention, and early treatment of type 1 diabetes. Although the symptoms of T1D may seem to appear suddenly, research has found that the potential risk can be detected years before symptoms appear. This advanced knowledge provides a window of opportunity when steps can be taken to attempt to delay or even prevent the disease. Although all people are susceptible to developing T1D, relatives of individuals with T1D are at much greater risk for development of the disease (about 15 times greater risk than people with no family history). TrialNet offers a free and simple blood test to assess the risk of developing T1D for people with relatives already living with the disease.
The study is divided into two parts: Screening and Monitoring. During screening, we will send you a blood test kit to take to your local Lifelabs or to Children’s Hospital where a small sample of blood will be drawn from your arm to test for diabetes-related autoantibodies. Autoantibodies are proteins that are made by the body’s immune system and if these proteins are present in your blood, it could mean that cells in the pancreas which produce insulin are damaged.
If the screening blood test shows that you have autoantibodies, we will ask you to participate in the monitoring part of the study which involves coming into Children’s Hospital once or twice per year for blood tests. If you do test positive for autoantibodies it does not mean that you will get T1D, it just means that you have a greater risk than if you tested negative.
TrialNet offers screening to those:
- Age 45 years and younger with a parent, brother, sister, or child with type 1 diabetes
- Age 20 years and younger with a niece, nephew, aunt, uncle, grandparent, half-brother, half-sister, or cousin with type 1 diabetes.
*If you are younger than 18, you are eligible to be screened once per year. If you are 18 or older then we just screen once.
If you would like to be sent a blood test kit or have any questions please contact:
BC Children’s Hospital
Phone: 604-875-2345 x4801